Sunday, June 21, 2009

BRAIN SURGERY




So, many of you know, and many of you may not know that I just recently had brain surgery. I was diagnosed with Chiari about two months ago. Basically some of my brain was coming out my foreman magnum (the hole where your brain connects to your spine). I always knew I was smarter than your average joe! I mean seriously, how many people do you know that has a brain to BIG for their skul!? Anyway, the surgery was scheduled for June 1st at 7:30 am. After about two months of preparing myself mentally, the big day finally came. As we were driving through sardine canyon on our way to the hospital (at 3 am) a coyote ran out in front of us and we hit it, ripping the bumper off my BRAND NEW CAR that I had only drove 3 times! In order to get the bumper off we had to use my moms teeny tiny cross stitch scissors to cut the broken piece of the bumper off! So we continued to the hospital and arrived on time, and began preparing me for surgery. After many tears they wheeled me into pre op. They gave me something in my IV to calm me down, not sure what it was but it made the curtains that were flowing in the air conditioning to look very beautiful, and made me very happy. So I waited, and waited, and waited and nothing happened. Finally the nurse came up to me and said, "Honey I am so sorry your surgeon mis scheduled, he is in south carolina, we can't do your surgery today." At this poing I was so drugged up that I was just fine with that, and really just wanted to go to Ihop for some pancakes. (you know you can't eat or drink 24 hours before the surgery..so I was starving!)

The next day I was not so happy! I had been mentally preparing for this for months, it's like going to the electric chair and then the power goes out! The doctor called and aplogized a thousand times and offered to refer me to another surgeon, but I still felt comfortable with him I mean we are all human, and rescheduled the surgery for the following monday June 8. The big day came again, and the surgery went off without a hitch. The surgeons removed part of my skull and the first circle of my first vertebre to make room for my ginormous brain and restore the correct flow of spinal fluid. A shunt was put into my spine to drain the fluid in order to let my brain heal. I spent three days in ICU and then spend two more days in the regular hospital. I went home and felt great for two days, then BAM! I felt like I was going to die, my head hurt so bad, I have never felt pain like that in my life. It felt like someone had attached a hose to the back of my head and was blasting my head full of water, then letting it out, and then filling it full again. Back to the doctor I went. Turns out the hole they put in my spine did not close on it's own and my spinal fluid was leaking out and not making it to my brain. They re admitted me to the hospital on the 16th of june. I had a blood patch done to try to close the hole. Basically they stuck a needle in my spine and shot my own blood into my spine, the blood is supposed to clot and fix the hole. I had to lie flat on my back for two days in order to let the patch clot. Two days passed, and THE PATCH DID NOT WORK!!!!! At this point I had spent about 6 days laying flat on my back (it's really hard to drink diet coke lying flat on your back, I should know I dumped many of them all over my face!) They did another blood patch on me and after another 24 hours of lying flat of my back the blood patch finally worked. I was released on saturday June 20 and am now just resting at a friends house in salt lake (the doc would not let me go far from the hospital). I have one more follow up visit and if all is still well I am cleared to go home! I have included some of my pictures of my incisions, they are pretty creepy, but the good news is my hair almost completely covers them! WOW, who knew being so smart that your brain is exploding out of your skull could be such a big deal!


10 comments:

  1. You are too funny. This all sounded very serious but I couldn't help but laugh with all your little jokes. I am so glad you are feeling better and I can't wait for you to get home so I can bring you some yummy comfort food. Hey I am heading up to Salt Lake to visit my Lil Sis so if you are still up there then I will come visit you. By the way why am I not on your friend list. I know I don't work with you any more but that doesn't mean we can't be friends. Love YA!

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  2. Were you actually doing some of those drugs as you wrote this? Ha ha just kidding. It isn't your brain that is so big it is just all those times as kids when I was preforming that shrunken head spell on you I forgot to include your brain. There I said it I confess!! Love ya sis! How come you didn't include a pic of the ENTIRE spot they shaved? You are making your hair doo look not so scary here!

    PS glad you figured out how to get in here. Your welcome!!

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  3. Glad to hear that you are doing better. Hope all goes well on the follow up and you can go home.

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  4. Selina Mari said at 2:51pm June 22

    Kalani, you are such a brave girl! And to share this with your wit and humor... I hope this is the end of your surgeries!!!!

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  5. Kalani, I just found your blog from Annika's. I admire your courage and grit! That is some serious surgery and you did well. Keep us posted on how everything goes. Bless you.

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  6. Kalani, I tried to visit you on the first and when I couldn't find you called the school. Dawn told me about the mis-scheduling. I can't imagine how you've felt over the last month, but I'm so glad things are working as they should. I was a little disappointed that you still have hair....I was hoping you'd be bald like me....It's really kind of liberating and you spend a lot less time getting ready each day! Anyway...when you get home, I'll come by when you're up to a visit. Are you feeling tired? What kinds of activities can you do or not do? Know I'm thinking of you and praying for the best! Lots of Love! Jill

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  7. Kalani, I just found your blog and my jaw has dropped! You are in my thoughts brave girl! I will not complain about ANYTHING all summer. I love your kindergarten quotes, too. I'll keep following your blog until I can see you in person.

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  8. OMGOsh!!! I am such a sucky a** friend!!! I am so sorry- here I am thinking "why doesnt Kalani write me back"... and now I know. I will know have to take apart my voodoo doll of you and remove the curse!!! You poor baby... that is very serious... I am so glad that you kept your sense of humor.... wow- still sitting here in shock. I heard you were having serious surgery but I was thinking boobs!!! Please let me know how you are and I am gonna try and find your number!!! Thinking of you....

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  9. Kalani, How do you do it? You are so brave and funny. I am horrified by your story, yet laughed my a-- off cuz you always have a great way about you. I can really see you going through it. I am so sorry that you have gone through so much. I didn't know you had this blog, I found it on megan maces blog! Now that I know I will stay tuned!
    Love ya,
    Lorene

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  10. Kalani,

    Seriously, i was telling you about my friend that had the same procedure. She had complications too. She went to a phenomenal surgeon and just had complications. She went home and had to go back as well! When I saw her after surgery she looked great! I was so surprised. Then a few days later... Just like you described. Bam! It was awful to see her so sick.. I am soooo impressed by your bravery, strength, and humor. Good for you. Thank you for sharing your story.

    Ande

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